So, it’s been ten years.  I’m sitting on the beach in Montauk, surrounded by family and friends. It’s a beautiful day and I am feeling blessed.

The memory of what happened all those years ago is painful but, not in that “rip your heart out” way of early grief.  It’s a different kind of feeling.  Sadder, in a way. More melancholy. I no longer picture her walking through the door or pick up the phone and forget for a second that it can’t possibly be her calling.

I still picture my mom as she was right up until a few days before she passed.  At sixty-six, she was young, beautiful and vibrant.  

I was away when it happened – my plane touching down on our emergency flight from California just ten minutes or so after she passed.  It was blessing to be spared seeing her suffer the last few days of her life. But, mostly it was a curse.

I had no chance to say “goodbye”. I’d missed my chance to see her beautiful face, alive, one more time. The ten days I was away was ten days more of loss for me.  I had been with her at every doctor visit, test and scan.  I’d sat with her countless times and waited for test results that could literally mean life or death. And, I missed the big one. The last one. She was there when I took my first breath. I never dreamed I’d miss her last.

The nightmares started right away and lasted for weeks. Her calling out to me and me not being able to get near her, to find her, to save her. Textbook stuff, really.

And then, of course, the absence. It’s been one of the hardest things I’ve ever had to deal with – and I’ve dealt with some pretty heavy crap over the years. 

I was paralyzed for a while. Trust me – losing your mother is as hard as you’ve ever heard it is. 

It took time, patience from those around me and, most importantly, from myself.  It took self care and self reflection. None of it easy work for someone like me. But, I put the work in. 

And then, one day, Eureka.  The breakthrough came. 

As corny and cliched as it sounds – my mother would be absolutely devastated knowing how emotionally, physically and mentally exhausted I was. I had become a watered down, half full version of myself.

I’ve told other people that have been through loss to “live to honor” their loved ones. Like most things in life; easier said than done.  

I decided to finally really live in a way that honored her. And I didn’t have to do anything special – not win awards, degrees or medals. Not be funny, gorgeous or popular. Not make lots of money and own a summer home.

I needed to be at peace. To be healthy.

To do what I love.

To be happy.

To live without limits.

To love with abandon. 

Because that is what a mother wants for her children. That and nothing more because, as the saying goes, “a mother’s love is the closest thing on Earth to God’s love. “ 

Or something really close to that. Lol.

I love you, Mommy. Rest easy.

“Be yourself”, they say

But, what do they really know, anyway?

Throw away quotes and Facebook dreams

Today, nothing is quite as it seems

Myself is someone I’ve never gotten to know

Since He left it’s all been for show

Like a shape shifting fairy, I learned long ago

Give them what they want and you will never be alone

At this point, the real “me” is is elusive

Shadows shrinking as the sun fully sets

I think I’m a good person but, I will hedge my bets

I am a product of all seen fit to put upon me

My scars are souvenirs to harass and enrage

My body a road map of too much pain

When the end comes for me

When that darkness fills my brain

Will I finally know

Why I’m forever stuck in the rain?

Photo credit: Gina Stacknick

Hello God – are you listening? I know you’re very busy but, I’m feeling very melancholy and confused right now. So many of us are. We are crowded yet, feel more alone than ever. We are capable of such goodness yet, often choose to be so ugly towards one another. This earth of ours, and the planets beyond, are truly breath taking and yet, so many of us miss out on the splendor of it all. Not because there are so many big cities; plenty of people live in rural communities or on mountainsides. There is beauty all around us and yet, our heads seem to be buried; in our work, our devices, on our lap tops, Skyping, Facetiming, watching a concert through your iPhone lens. To be honest, there are so many shows/limited series/movies on television that it can make you dizzy. I, myself, have scrolled through all the available content on all the available streaming services for two hours or more – longer than it would take to actually watch a movie.

Look UP! And, I’m not preaching from the choir here. I made a commitment to myself to ease out of the stress ball that had become my life since the beginning of 2018 and it’s coming along, slowly but surely. While writing this in my journal, I have a fire roaring to my right side and a beautiful furry belly lying on my left arm. I am sore from recent surgery and, of course, worried about the recent pandemic but, I am much calmer than if I was on FaceBook watching all of the horrible things that may or may not happen. As has been with the rest of my life, I try to take it as it comes. I’ll worry but, to a point. After battling cancer, losing both parents and grandparents and enduring the multiple (25!) surgeries in the past 18 years, I have learned that you cannot control so many things, like illness and death. So, I control what I can and, I give the rest up to God. I just glanced up and saw a beautiful cloudless blue sky, trees and some birds.

Thank you for all of the wonderful things you have bestowed on us, God. I apologize for generations who have taken these gifts for granted for so very long.

I have tried not to be bitter about the trials that have been put before me for the past, almost, two decades. I’ve tried to deal with them with what’s been put in front of me with as much positivity and dignity as I could. I will continue to try and spread happiness, I try to be generous with my words, my actions and, most importantly, how I react to the stressors.

I guess what inspired this entry (all of my blog posts are from my journal entries – those that I feel may help others) is interesting. I was on You Tube watching Singing Techniques and the Disturbed version of Simon and Garfunkel’s Sound of Silence was “recommended” for me. Of course, I always loved this version and it always hits me in a visceral way.  I listened a few times and then, went to listen to the original and, again, listened multiple times. 

With regard to the original Simon and Garfunkel version, their harmonies are, in my opinion, some of the best around. The Beatles did it well, Queen, The Everly Brothers and I happen to love them all in their own way. But the text. The text. The lyric. It is at once simplistic, symbolic, grandiose and sung with such truth in their hearts. Listening to it, really listening to it, was an “aha” moment for me this time. Simon and Garfunkel’s version is, obviously, harmonically beautiful, as mentioned above. They sing the song in an almost monotonous way (on purpose, of course). They sing with melodic consistency. In other words, the key changes are minor. It is an easy song to sing, which typically makes a song universally beloved. Due to their easy listening delivery, you can easily miss the messages in the text. Text and lyric in music are interchangeable. I think I use text more because I took a high-level American Poetry class in college and I distinctly remember both this song and “Eleanor Rigby” being poems I had to explicate. Make no doubt about it, song is poetry set to music.

As we know, of course, art is to be interpreted by the viewer/listener. To me, Simon and Garfunkel were warning us, albeit subtly with their delivery, that people were afraid to speak truth to power in generations before theirs, the sixties. The fifties and early sixties became a time many think of as “plastic” (the movie “The Stepford Wives comes to mind). There was something “vanilla” about almost everything; what could be published, what could be shown on TV and most importantly, what could be talked about without “hushed tones” (cancer, anyone?). I think we can all agree that in order to have “real” relationships with others, we have to be able to share our truth, whatever that may be, without fear of doing so (or staying “silent”). 

It was certainly a song that made a social contribution to their generation; to forget petty materialistic things, to realize that getting pregnant out of wedlock and smoking dope was not the end of the world. It sent the message that it was not necessary to keep up with the Jones’. The caveat is that to accomplish these goals we would, as a people, have to start talking truth to power.

We know how hard this generation tried; The riots, the burning of the bras, Martin Luther King, Jr., Robert Kennedy and the many, many protests. 

Now onto Disturbed’s version. Oh, Disturbed’s version. David Draiman’s hauntingly beautiful voice – he almost sounds like an entire choir all by himself, especially when he is in his lower register. Whenever I listen to this version, I instantly get goosebumps and end up crying by the end of the song. Sometimes it’s just a lonely tear that runs down my cheek and sometimes I am a bawling mess needing to blow my nose. It just depends on the day.

Where Simon & Garfunkel’s version was a plea for peaceful action by their generation, Distubed’s version is a controlled rage. Rage that the warnings we were given went unheeded. Anger that all of the hard work of the sixties and subsequent generations did was just not enough. We have made strides, for sure, but there are just too many causes and not enough selfless people to fight for them. The explosion of technology in the eighties and each subsequent decade just made things worse.

Refer back to paragraph one if needed. 

See? Somehow this type of stream of consciousness writing works for me. You can always clean it up later but, write it down as you feel it. Anyway, I’ve veered due to this but, I promise to bring us back to center soon.

Back to Disturbed’s version. Devain starts his beautiful rendition in a crystal-clear baritone but, what the band decided to do was bring their register up with each verse, even getting gritty and aggressive (their genre is metal, if you didn’t know) towards the end. Beautifully and effortlessly, Devain returns to that crystal-clear baritone for the final verse.

With a background in music, I can tell you that this is the song to study (The Disturbed Version) if you want to be a singer – beautiful pitch, clarity, tone, breath control, diction and, most importantly, Devain pours his heart into every single lyric he sings. That’s what makes people remember you – that’s what makes people feel. That’s what will make you an artist and not just a singer.

With the way Disturb has formatted the song, it builds to a very powerful crescendo. It makes you think, “Shit, what did we do? To humanity? To our World?”  They really whip you into an almost impossible to deny feeling of “we screwed up”. 

Back to center. I love you, God. I know you hear me. I promise to do even more to heed the importance of these important messages that have been ignored by too many for too long. I will be more present, more compromising and more empathetic. I will stop putting so much stock in material things. I will do my part to stop the impossible cycle of commercialism we are in by not shopping for my Halloween candy in August and my Christmas decorations in October. I will not shop on Thanksgiving. I’d rather pay ten dollars more for something to be able to spend the day with my family. And I will certainly NOT hoard necessities in a Pandemic the likes of which we have never seen.

This was certainly not written to say that because we haven’t “behaved” as a species, God is punishing us with this virus. I believe in a merciful God and that everything that happens, happens for a reason -although I understand that this is a hard concept for many to accept. 

I will tell you that I always do try and look for a silver lining. So, here goes – I don’t remember how long it’s been since we have all connected as a family this way (the doggie is thrilled!) and I haven’t been able to write a blog post for almost two years. After my dad died, I had complete writer’s block. I would journal but, nothing that was coherent enough to share. This quarantine, for me, has been a good time to reflect and reset. I hope that every person reading this takes this time to reflect on what is really important.

You may want to use “The Sound of Silence” for inspiration. Make sure you listen to both versions. It worked for me!

Stay safe, stay happy and love each other with open hearts.

Written Day 8 of The Coronavirus Quarantine, Commack, NY

Photo Credit Gina Stacknick

Me and Mom

I wrote this letter to my mother a year after she was diagnosed with Stage IV breast cancer, and about two years after I was diagnosed with Stage II breast cancer. I wrote it in September of 2004. I have tried so hard to reiterate over and over, in this blog, that it is so important to let the people you love know it, because you never know how much time you have. It’s a fleeting thing, time. And death does not discriminate. There are babies that don’t even get to take more than a breath or two after they are born, there are children that pass as toddlers, tweens, teens. Some people lose their lives at their peaks – in their twenties, thirties, forties. Many of the people I grew up with have passed in these past few years in their early fifties. And, some people make it to a ripe old age, and pass peacefully in their beds.

After my mother’s diagnoses, the chances of us having her around for more than a couple of years were slim. I worried constantly. And, then, I realized that not only had she not taken one sick day in the first two years of her diagnosis, she was thriving. All of my worrying was a huge waste of time – quality time I could be spending with my mother, making memories, drinking coffee, enjoying holidays together.

It was then that I decided that it was futile to worry. When it was her time, it was her time. Turns out that with Stage IV cancer, my mother lived for another ten years. Ten years where, despite some  therapy and doctors visits, cancer didn’t effect her life in the least.

I stumbled across this letter yesterday when I was looking through the “personal” file on my computer for something else. I think I was meant to stumble upon it – divine intervention, if you will. There are so many of my friends and family who have loved ones who are terminally ill – and so many who have recently lost loved ones, either the human kind or the animal kind.

I had forgotten all about the letter. When I found it, the memory came crashing back. It was a eureka moment after getting some good news at the doctor. I refused to waste one more second letting cancer define her. She was just my mom. I no longer looked at her  playing with my children and felt a lump in my throat. I no longer got nauseous the night before one of her doctor’s appointments, preventing me from doing something fun with her, like we always had, like going to dinner, or seeing a movie or just chatting over a cup of coffee.

I wanted to let her know how much she meant to me while she was alive. And, after doing so, I got the beautiful relationship with my mother that I had always had. Although I didn’t write another letter like this, I never missed an opportunity to spend quality time with her, or to tell her I loved her, or to give her a hug for no reason, or to buy her that bag she wanted but, would never buy for herself.

And, even though her death at the age of 66 was much too young, the years that we spent together after her diagnosis, and my eureka moment, were some of the best we  have ever shared together.

I wish you all a eureka moment, whether you have a loved one who is ill or not. Life is short. It can throw you a curve ball tomorrow. Let the ones you love know it, let them know how much they mean to you and how they impact your life. You won’t regret it.

Happy Mother’s Day to my Mommy in heaven and to all the other moms out there.

 

Dear Mom,

I’m not really that good at stuff like this, not really sentimental, but just wanted to shoot you a note letting you know some things I’ve been feeling.

I guess I just want to start by saying thank you. I can’t even imagine, now that I have my own kids, just how difficult it must have been to have to handle things on your own. You not only did it but, did it so well. Chrissy and I never felt how hard it must have been for you, never knew about the sacrifices you must have had to make. We never knew because you are such a good person you didn’t tell us – didn’t want us to live with that. Now that I am a mother, I understand. And love you for it.

I had another dream last night that everything with your test went well. That’s two. God is trying to tell me to not worry. To enjoy the time we have together without all of that garbage getting in the way. I am trying to do that. Trying to just make the “doctor” stuff something on the side. Don’t know how well I’m doing but I really am trying. You are so good at it. Trying to live by your example.

I know that you say I have some “unresolved issues” with you. Who knows? Maybe I do but, if so, they are buried so deep I can’t find them. What can I say? When I think about you, I think about you loving me, no matter what, my whole life. I think about building Lincoln logs on the kitchen table, of cuddling in bed with you and Chrissy and watching the old black and white TV, of you giving birth to Lori, of you loving Daddy. And now, most importantly, when I think about you I think about you loving my children. I know how lucky I am.

Would it have been great if my mom and dad had not gotten divorced and lived happily ever after?  I have no point of reference to answer that question. The life with daddy and Lori and with you being independent and strong is the only one I’ve ever known.  Who knows what would have happened had things been different? Also, if I hadn’t had a little turmoil as a kid, who knows if I would have been strong enough to weather this past storm??

I hope you are proud of me. I am so proud of you words don’t work. I wouldn’t trade one minute, one second of the time that I’ve lived on this earth, for any other. And that’s mostly because you are my mother.

I love you mom.

~Nicole

Can it really be five years since we last celebrated your birthday with you, Mommy? Five. That’s usually how we count years, isn’t it? In increments of five? The special birthdays like “thirty five”, “fifty” and “sixty five”.  The anniversaries, too? “Can you believe we’ve been married ten years? Or twenty five years?” You get the point. Even companies do it. You usually don’t get a seven year pin. It’s a five year pin, or a twenty or a thirty five.

Is that how we measure death, too? In increments of fives?  I think it might be because this is the fifth birthday since we lost you and it does feel special, but not in a good way.

It’s the first birthday that you have been gone that I can barely hold it together. I’ve been trying to sleep all night and no luck. I noticed the minute the clock turned 12:00 AM and the crying started then. I finally got it together at around two and decided to go back to bed. I shut off all of the Christmas decorations (which takes about twenty minutes) and went up to bed. I was in bed not even fifteen minutes when the tears started again. After tossing and turning for about twenty minutes, I came back down and turned everything back on. I decided I had to get it out – on paper. I started writing in my journal at around 3:30 AM and this is the result. I was too exhausted to type so, I hand wrote in one of my many journals. I thought maybe I would just keep it in my journal – just for me. But, as my faithful readers know, it makes me feel better to purge my feelings into this blog. So, here goes.

I just cannot believe that I can’t remember having your last cake. Was it at my house? At your house? Was it Carvel, Baskin Robbins or did we bake one? I remembered for a couple of years after you died and for the next two I went on with the act of purposely forgetting. Now, however, it’s been five years and I when I try to conjure up an image of that last birthday celebration, I just can’t. And, if I can’t now, I fear I never will.

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Five years. I went to Walgreens for a few things today and as I glanced at the “For Her” section of Hallmark, the cards were mocking me. I will never buy a mother card again. I remember the first year, passing that pink and flowery Hallmark section, I came home and cried my eyes out. They were puffy for two or three days. The second year wasn’t much easier. The next couple of years I would avoid that section altogether but, today, looking at those cards, I had a terrible sinking feeling – a lot like when I found out that you were going to die. At five years, the cards are truly mocking me. They are telling me that It is not a dream, no matter how much you cry or how much you try to avoid the facts. Your mother has died and she is never, ever coming back. You will never have to buy a birthday card for your mother because you no longer have a mother. She died at the terribly young age of sixty six. She would have been seventy one today. Sixty six plus five equals seventy one, after all. It’s simple math. Yesterday, I hated the “For Her” section of Hallmark cards because I knew that even though they were mocking me, they were telling me the truth.

So, five years means that Mason has never celebrated a birthday with you. We have no pictures of you blowing out the candles with Gavin on one leg and Mason on the other, with my boys standing behind you as we sang. Five years means that you never got to see how funny it is how Paulie Walnuts begs with all he has for a piece of cake.

A piece of my heart withered away and died when you did. And, for some reason, I’m having such a hard time on this fifth anniversary. I feel like another little piece of my heart died today (although not as big a piece as the day you died. Nevertheless, it’s gone. And, if history tells me anything, it won’t be coming back.

Maybe this is what will happen every five years – a little piece of my heart will die, until there isn’t any left, and then that will be the time for us to be together again.

Although I miss you more than I can put into words, please take just a sliver at a time. My children need me and my friends and family love me and we lost Daddy,  Neal and Amy so, my sisters, Aunt Angela and Uncle Neal need me, too.

In my heart, I know that I don’t have to worry. You ALWAYS put my needs before yours. We had such a special bond, I know that you will know when it is time for me to go and be with you and I trust your judgement with every fiber of my being.

So, I hope you are happy where you are. I hope Daddy got you a card and addressed it, “Dear Toots”. I hope that there is some kind of Mohegan Sun where you and Daddy are and you are winning every hand. Most of all, I hope that where you are, you don’t have to feel the pain that those left behind have to feel. Something in my gut tells me you don’t.

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Happy Birthday, Mommy. I love you and miss you more than I can really put into words. These words only touch the surface of how deeply I feel your loss.

Forever Yours,

Coley

I got through the first Father’s Day without my Daddy. It was not easy, and I spent a good deal of the weekend crying.

Unfortunately, too many of my friends are also celebrating the first Father’s Day without their fathers. One of the things that is so tough about it is that you want to try to be happy for your husband or mate, who may have children but, the pain of seeing that empty chair at the table is just almost too much to bear.

I had four men that were father figures to me and, to make matters even worse, they are all gone now.

The situation with my birth father was so difficult. My mother and he had a very contentious relationship and he was verbally and physically abusive, at times, to both my mother and I. Watching my mother cry, basically through her entire twenties and the first seven or eight years of my life, was not fun. He had an affair and started another family with that woman.  He left for good the night before my first day of kindergarten.  Although we tried to reconnect throughout the years, it just never worked out. He passed away five months after my Mom, in January of 2015. Although I didn’t grieve him in the way I would grieve the other men in my life, I was deeply saddened by the thought that we would never be able to mend the fences and have any sort of meaningful relationship. That ship had sailed. He was gone forever. To be fair, despite his shortcomings as a father to me, he was very affectionate. I get that from him. He was also very musical, and my sons and I both get that from him, and he was a very, very good athlete (he was voted “Most Athletic” in his high school senior year), and my son, Jack, gets that athleticism from him. Also, to be fair, despite all of the heartache, the truth of the matter is that if there hadn’t been a Victor Abate, there would never have been a Nicole Abate or a Christine Abate. For those things, I am grateful.

During the times he was away, my Grandpa Mike (or Honey, as I called him) took over as the main man in my life. He would come, in his operating engineer clothes, smelling like hot tar and sun, to my Father-Daughter tea parties, square dances, Brownie Daddy Days. He would always make me feel special – giving me lots of hugs and kisses, coming in to kiss me good night with his big manly hands (they were like baseball mitts) and giving me sweet butterfly kisses. He made me feel like the center of his universe. I used to worry when I was little about who would walk me down the aisle when I got married. Honey always promised me that he would. He would work all day out East, driving his big construction vehicles out in the hot sun all day, and then, go all the way back home to Locust Valley to shower, change and pick up my Grandma and then, turn right back around to pick me up in Commack so that I could sleep at his house for the entire weekend. At that time, my sister, Chrissy was still going on weekends to see my biological father. I refused to go because he wanted me to call his new wife “mom” and I refused. Anyone who knows me knows that if I don’t want to do something – I am not going to do it. Perhaps that is the Calabrese in me (which I get from Honey, by the way!).

In any case, I would spend the weekends at my grandparents, which worked out well for my mom, too, as she was still a beautiful, young and vibrant woman who was able to date on those weekends. I was happy with Honey and Grandma Nickie. We would get to their house late on Friday – Grandma having to keep elbowing him when he nodded off. Saturday I would either get a ride to Kramer’s stationary with Honey, where I was able to pick out pretty much anything I wanted (usually candy, Mad Magazine and the teen magazines that were in vogue at the time.) I would read my magazines and eat my candy in the garage while Honey was in his mechanic pit working on a car, or piddling around doing any number of things in the yard. I’d bring my baton, too, and practice my routines while listening to the Top Forty on the small boom box I kept there. Grandma would cook and the smells would be heavenly. Dinner was always some delicious Italian meal and then, we would cuddle up on the couch and watch The Love Boat and Fantasy Island. At bedtime, I slept in between them in there bed. I remember feeling so safe and warm and happy when they would reach over my head so that they could hold hands as they fell asleep. On Sunday mornings, Honey’s brother, Uncle Frankie, would come over with fresh tomatoes and they would do a shot (or two or three) or Sambuca. I was always allowed to have a little. We would head for home midday. I also cherished those rides home, sitting in between them, listening to songs from Grease and Saturday Night Fever on the radio of Honey’s Lincoln. He always had a Chevy pickup truck for work and a Lincoln for pleasure.

Other weekends, especially in the summer, I would go to my Aunt Angela and Uncle Neal’s, who lived in Bayville, about ten minutes away. I would spend time with my cousins Neal and David.  We had so many good times. Riding out bikes and roller skating, fishing, playing Charlie’s Angels or The Dukes of Hazzard. Unfortunately, Neal is the cousin I lost just a day and half before my step father (my REAL father) this past January. I miss him, too, every single day. Sometimes Neal and David would sleep at Grandma and Honey’s with me. We would eat Jello pudding pops, play Chinese jump rope, watch Nickelodeon and generally drive my grandparents crazy. These were good times. I thank God every day, still, that I had Honey as my pseudo daddy for those years. I know I was very special to him. He didn’t let me forget it, ever.

He started asking me when I was around ten what I wanted from him for my sixteenth birthday. He wanted to get me something special. My Aunt Angela had a beautiful rabbit fur coat and I remember I told him that I wanted that, for sure! By the time I turned sixteen, though, and Honey asked me if I decided what I wanted, I decided I wanted a piece of Jewelry – a ring. He brought me Squires in the Sears mall and let me pick out anything I wanted. I ended up picking up a ruby ring, that I still have and treasure to this day.

When my wedding day was approaching, I was very torn. My mom had been married to my Daddy (who most of you know as my “real dad”) and, of course, I wanted him to walk me down the aisle. I never forgot all of the times I had begged my Honey to do it, though so, I talked to Daddy, and explained to him my feelings and, of course, understood completely. We decided that Honey would walk me halfway down the aisle, to where Daddy was waiting, and Daddy would walk me the rest of the way and give me away. It was truly beautiful. I’ll never forget when I walked down the spiral staircase in my wedding gown, ready to get started. My Honey was waiting at the bottom of the stairs and his eyes immediately welled up with tears. He was able to get out “you look beautiful, Nicole”. It was a very special moment for us. I swear it was like people say they go through before their death – with the entire life flashing before their eyes. At that moment, I remembered all of the love and support that Honey had given me growing up and, I had to try very, very hard to not break down and mess up my professionally done make up.

The most amazing thing about my Honey was that although he was a “tough guy” –  a Marine who fought at the Battle of Iwo Jima, a mechanic, a heavy machinery operator. A big man – and one of the strongest men I have ever known with the exception of my husband, he was also able to give a little girl all of the sweet, loving things she needed. It wasn’t until I got older until I understood just how special that was. Honey passed away in January of 2009, to join my Grandma Nickie in heaven. I miss him each and every single day. And, I suspect, I always will. Losing him was so much more than losing a grandparent; it was like losing a father. And, although it hurt more because of that, I wouldn’t change a thing about having been so close to him. He was truly one of a kind.

When I was nine and a half, my Mom married my Daddy. Big Bob. When I think of the hard time I gave him when they were dating and, even when they first got married. You see, I was used to it just being my Mom, Chrissy and I. My Mom worked so much that she was pretty laid back as a parent. There weren’t that many rules. As long as I was in bed, it didn’t really matter how late I stayed up reading (I was resting, she would say!), we were able to sleep with her whenever the mood hit us (watching her little black and white TV until we eventually fell asleep), running out of the house with no hat when it was snowing was no big deal (you get sick from germs, not from the cold, she would say), we were always allowed to have all of our friends in our house, dinner time was a different time every night, depending on how late she had to work. We were one of the first generation of “latch key” kids and, that was perfectly alright. Chrissy and I had so much fun coming home by ourselves. Mom didn’t say “no” often. She was so busy making a living. Survival was the key at that time. I remember her patching our jeans and even rolling pennies once in a while so that she would run to Pathmark and buy macaroni and cheese for dinner.

When “Big Bob”, my Daddy, came into our lives, there was a huge learning curve for all of us. Daddy was stricter than Mom had been and, of course, being nine and six, we rebelled against this. WHY can’t we put our feet up on our chairs when we were eating dinner (and why did we have to be home for dinner at the same time every night?), why in the world did we need a bed time? A real one where when the lights went out, we actually had to go to sleep. Why in the world did we have to wear hats in the snow? You get the idea. There was a lot of fighting – between me and Chrissy and Daddy, between Mom and Daddy. Mom had to teach Daddy to pick his battles and to not expect us to change overnight. Daddy had to teach Mom that kids need some structure in their lives. And, he was right. But, it was hard going at the beginning.

We found our rhythm pretty quickly, though, and he was our “Daddy”. He was there for us, unconditionally, all of the time. Chrissy and I also both look a lot like our biological father so, it must not have been easy to take on these two little wildlings that look like the man that he knew caused the woman he loved so much so much pain.

Daddy was there for us when we were sick at night, had our horrendous bloody noses from the forced hot air in the house, when we were heartbroken over the loss of a “love”, when we needed advice about everything (Daddy, having been a hippie before marrying Mom, had a wealth of knowledge about most things teenager struggle with); we were able to talk to him about drugs, boyfriends, even sex. He was cool and blasted Queen’s Bohemian Rhapsody in the house, along with anything Dylan, Beatles, Joplin and Hendrix. We loved listening to his stories about Woodstock, driving across country on his motorcycle, and basically living life in a way that Mom never got the chance to. He opened his own photography business and named it “Chris-Cole” after my sister and I. We were so touched that he would do that. He was still strict but, we started to feel as though it was because he loved us so much and was concerned about our well-being.

Daddy taught us that anything was possible, that if you work hard there was nothing you couldn’t accomplish. I know he was so proud that I own my own business. He felt as though I took that chance because I had watched him do it. And, of course, he gave us the greatest gift of all – our little sister, Lori, a year after he and Mom got married.

And, here’s the thing that made him not only our “step” father but our “Daddy”. When Lori was born – his own flesh and blood, I have to admit I was a little worried that he would love her more. That’s just the truth. But, the real truth is that never, even for a second, did Chrissy or I feel as though he loved us any less than his own “natural” daughter. We were all special to him, in different ways. He called me #1, Chrissy #2 and Lori #3.

He made our house a home. We could depend on his love unconditionally. Even when he was angry (and, believe me – Chrissy and I gave him a real run for his money), we never doubted for one second how much he loved us. We were his “girls”.

And, when we had children, he was a wonderful grandfather. My kids didn’t realize, until much, much later, that his blood didn’t run through my veins. It was a very important lesson for them in that it taught them that it is people’s actions that count, and not whether you are technically “related” to that person. It’s a very important lesson and I’m glad my children learned it early. It will help them when they navigate the complicated world of relationships in the future. My kids loved their Papa and, it was a joy for him to have boy children to love, after having had three girls himself.

It was clear from the very, very beginning how much he loved us and was ready to be our Daddy. When my parents went on their honeymoon, they were gone for about ten days. Honey and Grandma Nickie came and stayed at our house to watch Chrissy and I. They got in late – we were able to stay up and wait for them. They weren’t home for more than maybe fifteen minutes, just starting to show us some pictures and talk about their time, when Chrissy and I, at the same time, got those terrible bloody noses. It was bad. No matter what they did, they couldn’t get them to stop. Grandma and Honey were still there and they were helping to but, to no avail. It got so bad, and Chrissy swallowed so much blood, that she ended up vomiting it up. This is when Mom passed out (she was known to do that in times of great stress! LOL!). There we were, in the kitchen that looked like a gruesome murder had taken place because of all of the blood all over the place, with my parent’s luggage still in the doorway, when they finally had to call an ambulance. We spent the entire night at the hospital where they were eventually able to cauterize our noses and get the bleeding to stop. Imagine, this is the first night in his new “home” and a precursor for how difficult it was to raise children, which he had never done before. He stayed cool, calm and collected, spoke softly and kindly to us to calm us down, took care of my Mom, who was freaking out, and basically took charge of the entire situation. We didn’t get home until around dawn. Some men, I’m sure, would have taken the luggage and run (or at least thought of doing that) but, not Daddy. From the day he became our father, he was our father 100 percent.

During the period of transition I spoke of above, I was also lucky enough to also have my best friend’s dad, Jim, to act as another strong father figure in my life. I watched how he was with his girls and knew that I wanted what they had.  Jim (or Mr. Jim, or Poppa Jim, which I also called him) was always there for me; he and his wife would talk to me when I would come over crying about how “strict” our new father was, how he didn’t understand how we had lived and how he couldn’t expect us to change overnight. They were always there to let me know that things would get better. That my new Daddy was a good man and would adjust to having kids of his own – that he just needed some time. I was always welcome there – to eat, to sleep over, to swim, to just hand around in a house I felt comfortable in while adjusting to my new situation at home. And, my new father wasn’t very affectionate. It’s just how he was raised and how he was wired. Jim was affectionate. And, that helped me. That helped me in a very profound way. I stayed close to Jim up until his death in August of last year. So, this is really my first Father’s Day without my Daddy and without the man who was so instrumental in making my new home situation go that much more smoothly, just by being there. He did this by loving me and by encouraging me that my new Daddy was a great man and things would get easier with time. Boy, was he was right.

To make matters worse, not only am I grieving for these men who meant so much to me that were lost this year, my best friend is grieving as much as I am. She lost her father and as often as I was at her home growing up, she was at mine and had a very special relationship with my Daddy. He used to call her his fourth daughter. I was so blessed that Daddy ended up in a rehab facility the last two months of his life that Jill worked in. She was able to look in on him several times a day, advocate for him, and just her presence gave him some comfort. The thing is, because we are grieving together, it is so hard to help each other. We do, don’t get me wrong but, it is incredibly hard to try and comfort someone who is grieving for the same people you are.

I thought of all of these men this weekend, what they meant to me, how they affected my life and what they all brought to it. Although, of course, it was Daddy’s empty chair at my sister Lori’s house that broke my heart the most. He was a wonderful man. He took my mother and us kids in and was there for us always and unconditionally. People who didn’t realize he was really my “step” father (and there were many, for he always referred to all three of us as his “daughters” and gave us all equal time – whether he was bragging about us, or complaining about us), would often tell him that Chrissy or I looked like him and we would get a chuckle out of that. But, it’s true. When someone means so much to you and has such a profound impact on your life, you do start to resemble them; physically, in the way that you act, in your expressions and so on.

As is often the case, when I started writing this, I did it to get my thoughts out on paper, where they hurt less than when they are in my mind. I always end up taking something away from them, though, and this is where this particular blog led me.

It’s unfortunate the way that my biological father’s relationship with me ended up. But, again, if there was no him there would be no me.

More importantly, I was so incredibly lucky to have three other men in my life that stepped up and filled that void that any little girl who has been left by a father feels. It warms my heart that Honey and Jim were there for me in such important and meaningful ways. I will always remember them as father figures and, they deserve that title. I was honored to be able to do the eulogies at both of their funerals. I loved them both very much and, more importantly, they loved me very much. They made me feel worthy of the unconditional love of a man. They made me feel beautiful and good.  They will always hold a very special place in my heart.

And, what can I say about the man who came into our lives and made us his own? He was an incredibly giving, loving, caring, funny, dependable man who would lie down his life for any one of ours. He was a wonderful husband to my mother and taught me so much about how a healthy marriage should look. With all of the horror stories you hear about “step” fathers, ours was the best. In all respects, the “step” was just not an issue from day one. He was our Daddy. And, although it was so very hard, I am so glad that we were there, by his bedside, at the end. We told him how wonderful he was, how great he did with all of us – that we are all happy, fulfilled, independent woman, and that we would be ok if he left, in large part because of all he had taught us.

So, although I am without these men on this Father’s Day, I am incredibly blessed to have had them in my life. I had more love from these men than a lot of people have in a lifetime. I know that there is a heaven, and I hope that there is no pain there; I hope that there is forgiveness and only good feelings. I hope that they look down and realize that it is the sum total of all that they did for me, which made me the woman I am today.

I like that woman. She is loving and generous, strong and resilient, forgiving and kind. She loves her husband, her kids, sisters, brother in laws, nephews, friends and pets with all of her heart.  She cares for her employees, treats people with respect and stands up for herself, when necessary.  These are lessons taken from these men.

And, as much as I love them and miss them, I know that there love is eternal – and that they will be looking down on me, guiding me and protecting me – all the days of my life.

Happy Father’s Day in heaven. All of my love – always.

xoxoxo

I have spent my life subscribing to the philosophy of Alfred Lord Tennyson;

“Tis better to have loved and lost then to never have loved at all”

Telling myself this has gotten me through some very, very difficult times. I have espoused this same quote to my children, to people close to me  trying to make sense of the loss of a loved one and, also, to friends that were going through very difficult break-ups.

This Mother’s Day morning, I woke up and was hit with such a huge wave of sadness and despair. It’s Mother’s Day, I have no mother. She was taken from me at the way too young age of 66. I no longer have a grandmother, who really helped to raise me when my mother was sick with cancer for the first time. I was only an infant. This was my fourth year that I haven’t had either one of them on this day. I know it’s supposed to get easier and I suppose someday it will but, today, when I got up, it hurt like hell.

It’s really not fair to get a good gauge on how well I’m “moving on”. Back in January, I lost my cousin suddenly (the closest one to my age and, for that fact, probably my closest cousin).  We have been close my whole lie. We grew up together. Just a short day and a half later, my daddy passed away. He was a great man, dad and husband. Of course, I was devastated by both of these losses but, to be honest, I was not really able to grieve them properly. The reason for this is my beautiful cousin, Amy.

I call Amy my cousin because that’s what she was to me. She started dating my cousin, Neal, when they were in college so; I have known her for almost 30 years. We have spent countless hours together; at my house, at family weddings, wedding showers, baby showers, holidays, etc. Amy was diagnosed with breast cancer that had already advanced about two years ago.

Naturally, because of my history of breast cancer, I had a very active role in Amy’s life dealing wither her own diagnosis. I went with her to pick out her wig, before she started chemotherapy, spent hours upon hours talking to her and texting her and Neal; about treatment options, how they were feeling emotionally, how to treat each other and be there for each other during one of the hardest times that they will ever have in their lives, the best way to recover from the surgeries, and about just about every other thing you need to start fighting this devious disease.

Unfortunately for Amy, she had a diagnosis of triple negative breast cancer. One of the most aggressive and one of the hardest to treat. Amy, my love, had to treat almost constantly for the two years she battled. And battle she did. The treatments were brutal, as were the surgeries. She ended up with almost every side effect one can get from chemotherapy, including a very painful condition called neuropathy. When standard chemotherapy wasn’t working, we were all excited when she started a promising trial, only to find that that didn’t work, either. By the end, she was both emotionally and physically exhausted, in an extreme amount of pain, unable to breathe because the cancer had spread primarily to the lung and because of her very low immune system, brought on by the chemotherapy, was having problems with fluid in the lungs. Nothing about the entire ordeal was peaceful and there was no silver lining.

And, let’s not forget, in the midst of all of this, when she could barely walk across a room without needing oxygen, she lost her husband and her uncle (who she was very close to), within a day of each other. Being Amy, there she was, at both services and funerals, sitting with the utmost in grace and dignity, all the while most likely thinking that there was a very good chance that the next time she attended a funeral she would most likely be the one in the casket.

The hardest thing for me to witness during the whole awful week of deaths, funerals and tears was when we went to my cousin’s final resting spot at the Locust Valley Cemetery. I knew that just about a week earlier, Amy had picked this plot for herself – made all of the arrangements. I cannot imagine being 44 and knowing that I was so close to the end of my life that I had to make “final arrangements”. The very thought of it makes me shudder.

At Neal and my father’s services, quite a few people came up to me to tell me how great Amy looked. You see, Amy was a gorgeous woman by anyone’s standards, and even with the extreme pain and breathlessness she was experiencing, and being there to bury her beloved husband and an uncle she loved so very much, she still looked beautiful. I however, having known Amy for so long, could tell that she didn’t look like “herself” but, looked very, very sick.

So, my grief had, in a way, been put off. Placed on the back burner, if you will, due to the worry over Amy’s health, my steadfast promise to be there for her every step of the way, along with my participation in fundraisers for her treatment (which was not covered by insurance), etc.

Well, my beloved Amy passed away at 3:10 in the afternoon this Thursday. Now she is gone. When I woke up this morning it really hit me that they are all gone. I will never get another big bear hug from Neal (he was the best hugger), I will never be able to hear my father’s booming voice and I will never again see Amy’s beautiful smile and hear her lovely chuckle. Never. Ever. Never again. It is now a trifecta of grief and it hurts. It really hurts.

Even more tragic is the fact that my Aunt Angela loved Amy as her own. She was the daughter that she never had. They talked 2-3 times a day, every day. I used to make fun of them because they started to look alike and sound alike. They even had the same mannerisms. For all intents and purposes, my Aunt lost two children in the span of 4 months. Think about that for a minute. I cannot even imagine the pain and the absolute devastation of her heart. I speak with her every day. Every day she makes me so proud. Instead of lying in bed with the covers pulled all the way up, she is working, she is preparing for the birth of yet another grandchild this Wednesday and she is spending time with her family. She is crying – a lot, of course but, she is living. She is so incredibly strong. Then again, she is my mother’s sister. My mother happens to have been the strongest women I have ever known. I come from a long line of strong, courageous women.

And, of course, I was thinking of Amy’s mother today. She lost her little girl. Although she has a son, she does not have another little girl. Amy and Neal were not able to have children and, so, there is not even a little piece of Amy in the form of a grandchild for Amy’s mother to cling to and give her hope. The pain she is feeling is enormous. The huge hole in her heart as a result of Amy’s death will never be filled. My heart aches for her, in a primitive, real and raw way. I pray to God that somehow she is able to find some joy in the rest of her life. After watching her poor daughter suffer and pass away before her eyes will, no doubt, make this very difficult.

As painful as it was for me upon waking this morning, I can’t imagine the pain either of these lovely ladies felt when they opened their eyes. How does one feel when they wake up on Mother’s Day after just losing a child/children? There are no words in the English language to describe it. The really aren’t.

I was looking through some old photo albums for older pictures of Amy so that I could use them to post a status update about her passing. The digital pictures I have are all of Amy in her thirties and early forties, for the most part. I wanted to find some of her with her big eighties hair, with my babies, when she was in her twenties. I was successful in finding what I was looking for. While going through the albums, I came across the pictures from each Christmas spent at Grandma and Grandpa’s house.  There are scores of us, sitting around three tables that had to be pushed together to fit us all. Looking at these pictures, a thought struck me like a bullet through the heart. Six of these beautiful souls were now gone from this earth. They were here, the asked us to pass the gravy, they handed out the presents they had gotten for everyone, they loved, they laughed, they cried, they felt joy and happiness and sadness and they had hopes and dreams for their futures. With the exception of my grandparents, who were in their eighties when they passed, they were far too young to leave us. They had so much more life to live, so many more laughs to have, so many more tears to shed. And, no matter how hard I try, I am having a hard time making sense of it all. There are days that I really feel my faith being tested, like today.

But in looking at the pictures of us all around the table(s), I also saw the faces of all of the wonderful people I still have in my life. Would I give up the love of even one of them so that I will not have to suffer if I lose them?

The answer is a big, resounding NO.

Tragic things will always occur in life. Of that we can be sure. Tragic things will happen no matter how many people I love and accept love from. And, when those tragic things happen, it will be the people I love whose arms I will run to. It will be those people I will cry with and pour my heart out to.

And, it are these people I love – my family and friends – who inspire me, who make me laugh until my stomach hurts and tears are running down my cheeks. They are who I will share my hopes, dreams and fears with. Without them, I wouldn’t be the person I am today and I even dare say that without them, it is possible I wouldn’t still be on this earth. Their constant support and love are what helped me through my heath ordeals.  Like the song said, they loved me through it.

So, at the end of this Mother’s Day, which was so incredibly difficult for not only me, my aunt, Amy’s mother and the far too many women I know who spent their days without a mother, a grandmother, their children, and a woman who was like a mother to them, I say I am so very sorry for your loss and I wish their was something – anything – I could do to take even a small amount of your pain away. 

At the end of this Mother’s Day, my biggest hope is that you spent a beautiful day with your mother, the mother of your children, your grandmother, your aunts, your God Mothers and your God Children. But, not only do I hope that you spent the day with them, I hope that you took in every moment, that you hugged them and kissed them and that you told them how much you loved them. Because tragic things happen, and the truth is you never know what life will throw at you – they could be gone sooner than you think. If you didn’t do that today, it’s not too late. Tomorrow is another day. Just make sure that you do it because remember;

“Tis better to have loved and lost then to never have loved at all.”

Happy Mother’s Day.

xoxo

 

I am never more inspired than when I am in the air. I could do without all of the airport bullshit ( w hich, I know is necessary to keep us safe but is, nonetheless, a pain in the ass.) I don’t know why; is it the tidy little way I can be sure my flight attendant will be down the aisle with my drink, come hell or high water, whether it’s the fact that I can have some hours of uninterrupted sleep (which, to be honest I rarely do on a plane but, still – its nice to know that I could if I wanted to), Is it the beautiful sky I see when I look out that window? The fact that I can watch a full movie, play my candy crush, work on a blog post – you get the idea. Now that my children are older. Air time is MY time. 

I think, however , that the biggest draw for me when I travel is the fact, although I know in my heart that all of my problems will still be there at home when I get back, I have taught myself to shelve them while I am away. This may seem like a simple concept to many of you but, it’s been a long process for me. You see, for someone my type of personality; A Type, controlling, perfectionist to a fault person with more than a little touch of OCD, it hasn’t been easy.
I have been through so very much the last three (has it been three already?) months. Between the loss of my cousin, who I was so very close to and then my dad passing not even 2 days later, on top of the almost constant pain due to this nasty weather and now, my late cousins wife – who I have known for so long has become my cousin by osmosis, is gravely ill with Stage IV cancer and nothing seems to be working. She needs a miracle. I am in constant touch with her because we are so very close and because, due to the fact that I am a breast cancer survivor, I understand certain terms, action plans, side effects and a fraction of what she is feeling mentally and emotionally. 

It is an honor for me to be one of Amy’s go-to people, believe me. It also, however, gives me anxiety. Anxiety about her future, about the small but always there chance that I myself, could recur at ANY time (cancer is a tricky fucker), my family has not even really been able to properly grieve my late cousin and my dad because Amy was admitted to the hospital a few days after both of them passed away. It has just been another one of those periods where my family can’t help but have a little pity party because, damn, we seriously have not had a break from serious trauma (and I’m not over-stating, as my faithful readers know) for more than three months at a time without another piano dropping on our heads.

Despite all of this- we go on. I have certainly had my days, which I’ve been told by a therapist is normal and right. I am currently on my way to Las Vegas with two of my closest friends to meet up with more of my closest friends, to celebrate the marriage of a wonderful couple who means a lot to me and whom I love very much. 

These are the things that keep me going. Despite being sad about my recent losses, despite my physical discomfort, despite the fact that I was hesitant to leave New York because of Amy, despite the work I left on my desk – I refuse to let the bad times prevent me from celebrating the happy ones. And, as I mentioned earlier, I have always gone away to do fun and happy things with my family and friends but, many times it was out of guilt for missing an important event or for making my husband and children miss them. I would have a good time but, I was, without a doubt, only really half there. The other half of me was worrying about some scan or test (for both myself and both of my parents), trying not to be terribly sad because of a recent loss (as I said – the hits have kept coming for the last decade), worrying about some friend or even just acquaintance, who I had been helping through their diagnosis, whether it just be to explain terms, give my opinion on a certain proposed action plan, accompanying them to the wig store or just listening to them cry and scream and rail at God. It has taken me a lot of therapy as well as a lot of practice to get to the point where I am now. 

Now, I am In the present. Now, I am where I am and with who I am with. In a real emergency, I can be reached. I try to live life in the moment – which seems so simple but, is a very hard concept for certain personalities, like mine, to grasp and implement in their own lives. I will land, and my friends and loved ones will have my full attention for the duration of the trip. I will not only be there but, I will be present. They will have all of me.
And, here’s the upside to getting away for a few days without bringing your mental baggage with you- the problems and issues you come back won’t feel so insurmountable, because you have taken the time that you need to recharge and realize how much you really love yourself and how strong you really are. 

So, if you are kind enough to still be reading my work, I think that the message in this one is pretty clear. I pray that all is well with you and your loved ones.The truth is though, that we all get a turn at batting in this here world that can seem so cruel. Some may have years without major incident and some may be called up to bat much more often than others. 
So, again, I implore you to be in the present, to learn not to sweat the small stuff, to choose your battles wisely with spouses, children and other loved ones and to generally try to live as happy a life as you can in the short time we have here. Amy is not even 45 yet- put that into perspective. You may need a self help book, a friend to chat with or even therapy.  

I assure you – it’s worth every penny.

In the words of Mr. Timberlake; “yesterday is history, tomorrow is a mystery.”

All we have is the here and now. Go out there and grab some!

 

I want to thank you all for coming out to honor my father, Robert Taub. Most of you know him by Bob, although he was also known as Daddy, Papa, Robbie, Uncle Bob, Mr. Bob, Big Bob and, most recently, Slim Daddy. Whatever it is that you called him, the fact that you are here today means that he touched your life in some way.

My dad was born on January 27, 1949 in the Bronx to Harry and Dinah. He grew up in Hicksville, NY and was always regaling us with stories of the Cloister Street Gang. Just to name a few, Joe B, Dale, Walter, Richie, The DeGuilios and the Zeigs. So many tight childhood friends, who he kept in touch with pretty much right until his death. I feel that that says something very special about a person. It speaks to loyalty, generosity and commitment.

Daddy played Little League for years and then, football in High School. If I must say, he was quite a fox. When he was 18, he traveled across the country to California where he rode motorcycles, went to Woodstock, had many adventures and was quite the hippie. I know that this time in his life – just having far out experiences with his buddies, was a very special and happy time in his life.

Being a true New Yorker at heart, though, he eventually made his way home. He ended up earning a degree from Nassau Community College and after numerous jobs – he was always telling us he went to Whopper College! – he ultimately discovered that his love for photography was what he was meant to do. In the early 80s, he started his own photography business and named it “Chris Cole” after me and my sister, Chrissy. We were so proud! He had an amazing eye and took gorgeous pictures. Although he later switched careers to computers (he would be mad if I didn’t say Apples, NOT PCs), he never got over his love of photography. For his entire life, he was always there, at every event, with a camera in his hand, capturing every joyful moment.

As soon as personal computers became popular, he was hooked. Mostly self- taught, he went on to have a very successful career as a Macintosh consultant. Some of the places he worked were Sony, Viacom, MTV and CBS. He was so generous with his knowledge and helped so many people learn to navigate this new technology. I know he’s helped many of you here, whether it be which computer to buy, how to use the newest versions, or which programs would best fit your needs. He was always on the cutting edge of technology and loved his gadgets. We were always the first family on the block with a video camera, a VCR, Disc Player, Blu Ray player, TIVO. You get the idea.

These were passions of his. And, I’m happy for him that he got to make a living doing things he loved. But, as everyone in this room knows, his real passion was his family.

He met my mother, Elizabeth, a single mother when I was very young. They met out with friends at a bar. He ran over to light a cigarette for her. Of course, the way he told the story was that she saw him from across the room, whistled through her fingers and yelled, “Yo, Sailor!” They fell in love quickly and soon, he asked her to be his wife. He was a man strong enough, and brave enough, to marry my mother despite her having two very young (and let’s face it – we’re talking about me and Chrissy), somewhat wild little girls. They married in 1980 and gave us our beautiful baby sister Lori in 1981. Finally, after all of the turmoil Mommy, Chrissy and I had been through, we had a loving and stable home. Daddy, at NO time, made Chrissy or I feel as though we were any less of his daughters than Lori was. This is truly a beautiful and rare thing.

And, come on, you have to give the man credit. He lived in a house with 4 females and 1 bathroom. He lived with mood swings, emotional outbursts, snotty teenage attitudes and, it was almost impossible for him to EVER get his hand on a phone that wasn’t being used, the cord stretched to the breaking point around the corner from the kitchen into our bedrooms. In the early 90s, my parents changed their phone number. A couple of years later, I was selling sporting goods at Sears when I was ringing up a middle aged couple. When they asked for their phone number, and they told me it was 499-0103, I excitedly told them that that was MY old phone number. Their faces changed immediately from good natured to something else. The woman said to me, “Oh, Lord. Are you Nicole or Chrissy?” Apparently, they were still getting calls – lots of calls – looking for Chrissy and I at our old number. It was an expensive treadmill and I was on commission so, thank God I did not lose the sale, although it was clear that they weren’t happy!

Despite raising us three girls, who could drive him absolutely nuts, we had a very happy home. We celebrated holidays in a huge way, for every birthday, the house was decorated and filled to the brim with presents and loved ones. We took trips, we went to see movies, we wanted for nothing.

Daddy was also such a loving husband to my mother. They were different in so many ways but, something about them just worked. He would go to the moon and back for her and she knew it. When we went through Mommy’s things after she passed away in 2013, we found some love notes that he had written her over the years. Some were sweet and, some scarred us for life. Really, there are certain things children do NOT want to know about their parents private lives.  However, the one thing that was clear in each letter was how very much he loved her. She was his “toots”. I am so happy that they found each other and believe that theirs was a true love story. Daddy was heartbroken when Mommy passed away. He was never the same. The only thing that got him through it was his children and grandchildren so, let’s go there.

He called me #1. Although I was so happy to have a dad who loved me, boy did I give him a run for his money. My mom had been extremely laid back and I was NOT happy when he first came into our lives and tried to add some discipline. Bedtime? What’s that? What do you mean I have to wear a hat in 20 degree weather? I just did my hair! I’m punished? What the heck does that mean? Eventually, though, we found our groove and, once we did, it was magical. He put up with my boy crazy phase, he allowed my friends to practically live at my house – especially Jill, who he affectionately called his fourth daughter. He was proud of my scholastic achievements, beamed when I graduated from college and felt like I took after him when I became a small business owner. He was tough but fair and taught me life lessons that helped make me into the person I am today. When I married Al, he couldn’t have been happier. He loved Al like his own. They had a very special relationship. I know that Al was always there for him but, after he got sick, Al became his rock. My entire family is grateful to him for this – and will never forget that kindness that he showed Daddy and the wonderful way he took care of him these past few months.

Chrissy was #2. If I gave Daddy a run for his money, she gave him an Iron Man race. We all know Chrissy, and the teenager she was – up for anything to have a good time. A memory that comes to mind is when she traumatized Daddy by basically totalling her car in the city, coming home, parking the car right in front of the house and going to sleep. You can imagine his reaction when he woke up and looked out the front window and saw the car. After ascertaining that she was not hurt – I was seriously concerned that HE would hurt her. Despite many other stories like these, she could also make him laugh like no one else. He used to love to tell the story of when they went to the supermarket and he told her to go to the next aisle and get a 5 pound bag of sugar. He almost peed his pants when she called out to him “Daddy, do you mean the bag that says 5 libs?” As she got older, all of the values he instilled in her came to fruition. He was so very proud of her work ethic and her extremely huge heart. He also used to say that she was the most like Mommy – she would do anything for anyone – always. He really depended on her after Mommy died. She was the one who would run errands for him and check on him every day. He was also thrilled when she married Jay, the love of her life. He knew how much he loved her and that he would be able to be there to comfort her in times of need. You see, when people have hearts as big as my sisters – empathic people – they don’t only feel pain that is their own, they also feel the pain of others around them. It can be a heavy burden to bear.

And then #3, Lori. His baby girl. The greatest day of his life was the day she was born. I remember he was deliriously happy holding her – she couldn’t have been more than a few minutes old – when she farted – loudly! He was stunned. My mother leaned over to him and said, “You know that they do that, right Hun?” Again, he couldn’t stop laughing. So much that he was almost crying. Since the photography studio was in our garage at the time, my mom went outside of the house to work and he was a stay at home dad before it was in vogue. Because he took care of the day to day caring of her, there is no question that they shared a special bond. They did everything together. Wherever he went, she went. When he rented space for the photography studio, he took her with him every day. She would sit at the front desk and, as the customers would come in, she would say, “You can give me the money and then go talk to him”. She was four. He was also incredibly proud of her athletic ability. She was a phenomenal soccer player – a star, really – and, he did not miss ONE game. Ever. There he was, on the sidelines, cheering her on with that big booming voice of his. He was also thrilled with Lori’s choice of a husband. He couldn’t love and respect Chris more. My sister, as I’ve said before, can be a little high maintenance. He always knew that Chris would be able to keep her happy without giving into her every whim and landing them in the poor house.

And, then came the grandchildren.

First was Michael, who was special just for the very fact that he was the first one to make Daddy a Papa. He was so proud of his smarts and kind heart. I am so very happy that not only was he around to hear that Michael got into every college that he applied to but, also that he got academic scholarships.

Then, Jack, who was raised by a village since I was diagnosed with cancer just four months after he was born. Daddy was amazed at his resilience and kindness. He made mention, many times, about how special he thought it was that not only did Jack spend time with his baby cousins but, that he did it with a smile on his face, with patience and with love. He was also proud of his skills both on the basketball court and the football field. All the while maintaining grades high enough to land him on the honor roll every quarter since middle school.

Then Gavin, Lori and Chris’s first baby. All you have to do is look at a picture of him holding Gavin to see how much joy he brought him. Gavin is smart, kind, funny, loving and a real “Papa’s Boy”. He could put together a puzzle of the entire United States by the time he was a year and a half. You know how much Daddy loved him also, because he forgave him for being a diehard Mets fan! Daddy’s favorite sport to play, and to watch, was baseball. He was so proud and happy that Gavin shares this passion!

And, finally, Baby Mason. Daddy’s doppelganger. His zest for life, humor and spunk was a joy for Daddy to witness. Mason was the blessing that God gave to Daddy after he lost my mom. It gave him so much happiness to watch him run around with unbridled joy. Thank God for Mason – because of his incredible resemblance, it will be impossible not to think of Daddy every time we see him.

So, Daddy loved many things; photography, gadgets, computers, his friends, poker, his koi pond, all of the dogs and birds that we had throughout the years, Bob Dylan, playing his numbers, motorcycles, the Yankees, his hippie days – but, there was nothing he loved more than his family. Not for one second. Ever.

I can’t neglect to mention just how incredibly strong Daddy was. Despite many health issues in the past, he always pushed through to fight another day. Although this last illness finally took him from us, he was positive and looking towards the future right up until the very day that he passed.

Daddy, Papa, Mr. Bob, Mr. Taub, Uncle Bob, Big Bob, Slim Daddy

  • We will miss you at every milestone
  • We will miss you at every holiday
  • We will miss you at every birthday
  • We will miss you on a random Tuesday afternoon when there is nothing going on

However, we are happy that you are with Mommy. We are happy that you are with all of those who you loved and who passed before you. We are happy you are with God.

We will take care of each other because that’s what you taught us to do. We will live life to the fullest, in your honor; no matter how hard it is, because we love you that much.

And, lastly, please take care of Little Neal. He just got there a day before you. We know how very much you loved him. Please watch over him until his parents are reunited with him again. 

Love you always,

Number 1

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Cancer is truly the gift that keeps on giving. Whether you are newly diagnosed, in remission, or considered “cured”, it is something that will truly change your life forever.  It will change it in ways that you cannot even imagine if you tried and cannot understand unless you have been sat down and told that you have it.

My cancer diagnosis was way back in 2002. So, technically, I have been cancer free since I had my cancer surgeries that same summer. Unfortunately, though, your cancer journey doesn’t end when the cancer is cut out. As most of you know, for me, it caused the need for over twenty surgeries due to a failed reconstruction, to have to have poison in the form of chemotherapy coursed through my veins, to have radiation shot at my body and to be on a hormone blocking therapy in the form of a pill every day.  Yes, every day I still take a pill to prevent the cancer from returning and cutting my life short. Each and every day, when I raise that pill to my lips, I have to think of my cancer.

Now I’m faced with the problem of the medication finally starting to cause side effects in my body in the form of problems in my uterus.  The medicine I am on, Tamoxifen, can cause a slight increase in the chances of getting uterine cancer. It is just a slight increase, however, and you always have to weigh the benefits with the risks. For me, it was worth it to take the risk in order to stave off the cancer. The standard of care, however, is only ten years.

Because it is the only medication that can be taken when you are pre-menopausal, and my body refuses to go to that menopausal place, I was in a conundrum when I reached the ten year mark. It was unchartered territory. Do I stay on the med and take my chances? Do I have surgery to put me into surgical menopause? At the time (three years ago), the best option seemed to be to stay on the medicine and just monitor the uterus to ensure that no changes were taking place. So, that is what I did.  It made sense for me. Tamoxifen can cause many side effects and I was lucky that the only one that seemed to affect me was a fifteen pound weight gain. No big deal in the grand scheme of things. I know some women who refused tamoxafin because of the side effect of weight gain, and am so sorry to report that more than one of them are no longer here.

So, I continued to swallow that pill each and every day (along with a baby aspirin, to ensure no blood clots). The first two years the uterine sonogram was uneventful. This year, however, was a different story. I had a thickening of the uterine lining, along with polyps and fibroids. I’ve had two procedures to clean all of this out and, as I sit here typing, I can still feel the cramping and pain from the surgery on Monday.

I will have another surgery in January. A big one. A total hysterectomy, along with two hernia repairs from the prior reconstruction surgery. The surgery will last hours and the recovery time will be ten to twelve weeks.  The hernias are painful and don’t look nice although, I don’t think I would have had them repaired if not for the fact that they can actually damage internal organs as they get worse.  I have to have the total hysterectomy so that I can go on another medication to prevent the cancer from coming back (there are about twenty different meds that one can take if they are POST-menopausal). Technically, I don’t need to be on any medication as, being so far out from the original cancer with no recurrence, I am considered “cured” but, how would I ever look at my husband, my kids, my family, my friends if I stopped taking the medication and the cancer returned? I couldn’t live with myself. I am also interested in living as long a life as possible.

So, as much as we like to think that people who have finished their chemotherapy and their radiation, people who are ten or fifteen years out from their initial diagnosis, are “cured”, please remember that even if they are not still facing “treatment”, they are facing mental and emotional challenges for the rest of their lives.

Once you are diagnosed with cancer, you are never the same. You have stared into the abyss and have faced your mortality. Your heart breaks when you hear of someone else being diagnosed because you know that they will never be the same. It’s difficult for you to watch television shows where cancer becomes a story line (Parenthood did it to me and now Ray Donovan is doing the same, just to name a couple).

Every doctor visit is scary, whether it is logical or not. You are never of the mindset that “all will be ok” again. That ignorant bliss has been taken away from you. Waiting for any biopsy is an exercise in fear and angst. Your mind plays funny tricks on you. Any lump or bump on any of your family members, friends and even animals is, until you are told differently, cancerous.

There are some good points, though. When I do get those biopsy results and they are negative, I don’t take it for granted. I dance, I yell, I am happy for a week! When little things that used to really bother me happen, I don’t care as much. No big deal. When I go out with friends, I am so grateful to be there that I always have a good time. I enjoy the little things in life, like a rain shower, the soft licks of my dog on my face and my fireplace glowing . I love fiercely and with my whole heart. I treasure my friends and my family because I know that they can be gone in a heartbeat. I have learned that I have no control over most things – which is huge for me because I have always been a control freak. It is much more relaxing this way.

I am a work in progress. I no longer feel  like every cold is the beginning of the end of my life and I’m pretty confident that I will be here to see my grandchildren but, I don’t take it for granted.

I also think I am a better friend than I would ever have been had I not had cancer. I remember how much I needed people to really listen, to really hear my fears when I was sick and, I definitely listen and am there for people when they need me. I would do just about anything for the people I love, and am rewarded with family and friends that have my back, all the time, no matter what.

I asked for prayers this Sunday for my surgery on Monday and got over two hundred responses. It is truly heartwarming. It makes me feel safe. It makes me feel loved. After the surgery, it took me over four hours to return all of the phone calls, texts, messages, etc. that I received to check on me. Priceless. It was just a small procedure and yet, I was surprised with gifts sent to the house to cheer me up. I am loved.

So, please remember, for those going through cancer now or who have survived cancer in the past. It is never far away from us. We need the constant support and love of those who are around us. It makes a world of difference in our spirits and in our recovery and ability to stay well. When someone with cancer talks to you, feel honored that they trust you with their deepest fears and really listen. Remember when they have a test and make it a point to ask how they made out. Same with doctor visits. Trust me, it will mean the world to them.

We are still people but, we are changed. And, although we would never want our cancer to define us, we do need people to understand that it is a part of us now, ingrained in our DNA, for better or for worse.

Thank you, friends.

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